• About Jumpin’ for Jazz

    About Jumpin’ for Jazz

    Headquartered in Indianapolis, Indiana, Jumpin' for Jazz, Inc. is a charitable, tax-exempt, 501(c)(3) organization, dedicated to improving the lives of children suffering from Friedreich's ataxia, ensuring quality care for all and empowering research organizations to find the cure.

What is Friedreich’s Ataxia?*

  • An inherited disease that causes progressive damage to the nervous system.
  • Named after the physician Nicholaus Friedreich, who first described the condition in the 1860s.
  • “Ataxia” refers to coordination problems such as clumsy or awkward movements and unsteadiness, occurs in many different diseases and conditions.
  • The ataxia of Friedreich’s ataxia results from the degeneration of nerve tissue in the spinal cord and of nerves that control muscle movement in the arms and legs.
  • Friedreich’s ataxia, although rare, is the most prevalent inherited ataxia, affecting about one in every 50,000 people in the United States. Males and females are affected equally.

*Retrieved From National Institute of Neurological Disorders and Stroke

 Visit our Resources section to learn more:

Learn More About Friedreich’s Ataxia



     Crowdrise Holiday Campaign

             Help Jumpin’ for Jazz raise funds to find a cure for Friedreich’s ataxia    Click Here


     Emily talks about her life with FA – September 2018

Emily is about to graduate from college and she lives with FA every day. Hear her story   Click Here

Dr. Payne Video – August 2018

Dr. Payne talks about FA and the growing momentum toward effective treatment   Click Here