What is Friedreich’s Ataxia?*
- An inherited disease that causes progressive damage to the nervous system.
- Named after the physician Nicholaus Friedreich, who first described the condition in the 1860s.
- “Ataxia” refers to coordination problems such as clumsy or awkward movements and unsteadiness, occurs in many different diseases and conditions.
- The ataxia of Friedreich’s ataxia results from the degeneration of nerve tissue in the spinal cord and of nerves that control muscle movement in the arms and legs.
- Friedreich’s ataxia, although rare, is the most prevalent inherited ataxia, affecting about one in every 50,000 people in the United States. Males and females are affected equally.
*Retrieved From National Institute of Neurological Disorders and Stroke
Visit our Resources section to learn more:
2018 Spring Campaign
We are happy to announce that our spring campaign benefiting Friedreich’s Ataxia raised $6,000 that will be used for research and those with the disease. THANK YOU everyone who donated!
Father’s Day 2018
The Indianapolis Star and USA Today have articles about Jazmyne and Virgil Harris. To read the article in USA Today Click Here
Read more about our Jazz Kitchen Concert benefiting research in finding a cure for Friedreich’s ataxia Click Here
June 10, 2018 Proclaimed JUMPIN’ FOR JAZZ DAY by Mayor Joseph Hogsett
To read about the recognition from the Mayor of Indianapolis Click Here
2018 Jefferson Awards
April 18, 2018 – Jumpin’ for Jazz founder, Virgil Harris, was honored for his service at the 2018 Jefferson Awards Foundation banquet presented by Citizens Energy Group and RTV6 News Click Here
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