Headquartered in Indianapolis, Ind., Jumpin' for Jazz, Inc. is a charitable, tax-exempt, 501(c)(3) organization, dedicated to improving the lives of children suffering from Friedreich's ataxia, ensuring quality care for all and empowering research organizations to find the cure.
Jumpin' for Jazz has a two-fold mission: to find the cure for Friedreich's ataxia and its devastating complications through the support and advancement of research; and to actively serve the 5,000-6,000 young people in the United States affected by Friedreich's ataxia — a rare, untreatable and incurable disease inherited at birth.
Even with intensive care, Friedreich's ataxia becomes a deadly disorder that destroys nerves, impairs motor skills (including the ability to walk), leads to heart complications, and loss of speech. Most Friedreich's ataxia victims do not live past their 35th birthday.
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